The National Center for a System of Services for CYSHCN created this tool as a resource for state or jurisdiction Title V CYSHCN programs to approach their needs assessment process in alignment with a national framework for CYSHCN. This resource outlines key questions to consider and how each question intersects with the required areas of the Title V needs assessment, universal National Performance Measures and the areas of a national framework.  These questions were informed by National Center resources, project activities and the national framework articles. We encourage you to use this as a starting point and develop additional research questions to inform your needs assessment, including both your 5-year needs assessment and ongoing needs assessment. Questions can be perceived differently and may fit into more/less categories than as outlined below. 
Principles and associated strategies are described in Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families.
This resource was developed in May 2024.
Printable Version
A downloadable version of the "Connecting Your Needs Assessment with a National Framework for CYSHCN: Key Questions" resource is available.
Last Updated
06/26/2025
Source
American Academy of Pediatrics